Participants sought for new study on Dravet syndrome
The AUTONOMIC study is currently being conducted at the Department of Epileptology at the University Hospital Bonn. This study focuses on the developmental effects of the Dravet syndrome on autonomic functions, specifically heart rhythm and respiratory function.
The genetic alteration in Dravet syndrome can impact the heart and possibly breathing. As a result, in patients with Dravet syndrome, the risk of sudden death due to cardiac and respiratory arrest following an epileptic seizure is slightly higher than in most other forms of epilepsy. A better understanding of these connections is necessary in order to develop preventive measures for such fatalities and to provide patients and their families with better information about the risk.
Children (older than 6 years), adolescents, and adults with genetically confirmed Dravet syndrome can participate in the study. Participants are still being sought!
Are you interested in participating in the study? Whom can you contact?
If you are interested in participating in this study, we will arrange an appointment with you on an outpatient basis at the Department of Epileptology in Bonn. Alternatively, you can also schedule an appointment for a video consultation.
Please contact our study coordinator, Ms. Ines Goebel (), if you are interested in participating in the study.